DS-Connect® is a powerful resource where people with Down syndrome and their families can:

  • Connect with researchers and health care providers.
  • Express interest in participating in certain clinical studies on Down Syndrome, including studies of new medications and other treatments.
  • Take confidential health-related surveys. These surveys are aimed at better understanding of the health of people with Down Syndrome across their lifespans.

Join the Registry Set up a Professional Account Información en español

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Now Recruiting

Clinical trial for people with Down syndrome who also have an immune skin condition

Researchers at the Linda Crnic Institute for Down syndrome are trying to determine whether tofacitinib is a safe and effective treatment for immune skin conditions in adults with D... Read more about Clinical trial for people with Down syndrome who also have an immune skin condition
 

Safety and efficacy of tofacitinib for immune skin conditions in Down syndrome

Researcher Dr. Joaquin Espinosa at The Linda Crnic Institute for Down Syndrome, Colorado is trying to determine whether tofacitinib is a safe and effective treatment for immune ski... Read more about Safety and efficacy of tofacitinib for immune skin conditions in Down syndrome
 

The Effect of Congenital Heart Disease on Employment, Neuropsychological Outcomes, and Quality of Life in Adults with Down Syndrome

Would you like to learn more about a survey-based research study that aims to answer questions about outcomes and function in adults with Down syndrome? Many children wit... Read more about The Effect of Congenital Heart Disease on Employment, Neuropsychological Outcomes, and Quality of Life in Adults with Down Syndrome
 

University of Alabama Intellectual Disabilities Participant Registry (UAIDPR)

UAIDPR is a program in which individuals with DS participate in studies that help to increase understanding of DS and how to meet its challenges. Research studies often have diffic... Read more about University of Alabama Intellectual Disabilities Participant Registry (UAIDPR)
 

Registration Goal

Goal: 10000
Current: 5094

Need Outreach Materials?

Visit the Down Syndrome Consortium website to get DS-Connect outreach items in English and Spanish.