DS-Connect® is a powerful resource where people with Down syndrome and their families can:

  • • Connect with researchers and health care providers.
  • • Express interest in participating in certain clinical studies on Down Syndrome, including studies of new medications and other treatments.
  • • Take confidential health-related surveys. These surveys are aimed at better understanding of the health of people with Down Syndrome across their lifespans.


Explore the Data

Remember, this is your registry and you’re in charge of the information in it. Check out how to explore the information you and others have provided to learn more about Down syndrome and its impact on other community members. Log into your account today and start exploring the data.


Registry Updates

Get information on the latest registry-related news, including ongoing efforts to advance research discoveries, develop treatments, and improve the quality of life for people living with Down syndrome.


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The Down Syndrome Registry