DS-Connect® is a powerful resource where people with Down syndrome and their families can:

  • Connect with researchers and health care providers.
  • Express interest in participating in certain clinical studies on Down Syndrome, including studies of new medications and other treatments.
  • Take confidential health-related surveys. These surveys are aimed at better understanding of the health of people with Down Syndrome across their lifespans.

Join the Registry Set up a Professional Account Información en español

DSConnect
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Now Recruiting

University of Alabama Intellectual Disabilities Participant Registry (UAIDPR)

UAIDPR is a program in which individuals with DS participate in studies that help to increase understanding of DS and how to meet its challe... Read more about University of Alabama Intellectual Disabilities Participant Registry (UAIDPR)
 

Studies of Aging in Down Syndrome

The Eunice Kennedy Shriver National Institute of Child Health and Human Development and the National Institute on Aging, both within NIH, ar... Read more about Studies of Aging in Down Syndrome
 

Brain Development in School-Age Children with DS

Researchers are looking for children ages 7-11 with Down Syndrome who would like to participate in a study of brain development.  Children ... Read more about Brain Development in School-Age Children with DS
 

Brain Development in Infants with Down syndrome

Researchers at four different locations (Washington University, St. Louis, MO; University of North Carolina, Chapel Hill, NC; University of ... Read more about Brain Development in Infants with Down syndrome
 

Registration Goal

Goal: 10000
Current: 4747