Registration

The National Institutes of Health (NIH) and the Down Syndrome Consortium are pleased to present DS-Connect®: The Down Syndrome Registry (called DS-Connect® throughout the rest of this document). We invite you to take part in this research project!

Steps for joining DS-Connect®

It only takes a few steps to join DS-Connect®. The whole process should take less than 20 minutes to complete. If you have Down syndrome (sometimes called being a self advocate), you may want to ask a trusted person to help you finish the steps.

  1. Create your account by filling in the needed information:
    Enter your first name and last name. Then, select the item that best describes how you are related to the person with Down syndrome. Next, enter your email address, and then enter it again to confirm the address. Choose a user name and a password and enter them in the labeled boxes. Enter your password again to confirm it. You will use your user name and password every time you log into the site. Select the box to let us know we can contact you by email, and enter the security code. Once you've entered all the information, select "Register".
  2. Selecting "Register" will take you to the online consent form-the page where you will officially agree to take part in DS-Connect®. Review the information on this page completely. Then select "Next".
  3. As you move through the next few pages, select the answers that best describe you or apply to you. Select "Next" to move forward.
  4. Once you've answered all the questions, select "Continue to DS-Connect®" and then "Next" to go into the site. Once in the site, you'll be able to add background information for the person with Down syndrome, make decisions about the use of your contact information, and answer questions about the health of the person with Down syndrome.

Create an Account

Your First Name: * This Field is required
Your Last Name: * This Field is required
  Please select the best option:
Your Relationship to Participant with DS: Information for: Your Relationship to Participant with DS : Please tell us how you are related to the participant.
Your Email / Re-enter email: * This Field is required Information for: Your Email : Please enter a valid e-mail address. A confirmation email will be sent to this address upon registration. * This Field is required Information for: Verify Your Email : Please enter a valid e-mail address. A confirmation email will be sent to this address upon registration.
Your Username: * This Field is required Information for: Your Username : Please enter a valid username.  No spaces, at least 3 characters and contain 0-9,a-z,A-Z
  Please enter a valid password. No spaces, at least 8 characters and contain at least one lowercase letter, one uppercase letter, one number and one special character. For example: Password@1. In an effort to maintain security, your password will be required to be re-set regularly.
Your Password / Re-enter password: * This Field is required Information for: Your Password : Please enter a valid password.  No spaces, at least 8 characters and contain lower and upper-case letters, numbers and special characters. In an effort to maintain security, your password will be required to be re-set regularly. * This Field is required Information for: Verify Password : Please enter a valid password.  No spaces, at least 8 characters and contain lower and upper-case letters, numbers and special characters. In an effort to maintain security, your password will be required to be re-set regularly.
* This Field is required
I agree to be contacted at this email address with questions regarding this account.

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