Registration

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DS-Connect® and Research

The purpose of DS-Connect® is to collect information to better understand the health issues in the Down syndrome community and to promote research in Down syndrome.

Professional Registration

Level 1 Access

(Note: Registration for a level 1 access account is required for either level 2 or level 3 access)

Professionals, advocacy representatives, researchers and other users with a scientific or research interest in Down syndrome can create an account on the DS-Connect® Professional Portal. Once their account is set-up, they will have access to the de-identified data from DS-Connect® participants which is similar to a registrant’s view.

Contact the DS-Connect® registry coordinator at This e-mail address is being protected from spambots. You need JavaScript enabled to view it with questions.


Contact Information


This is a required field.
Provides more information about that field.

First Name: * This Field is required
Last Name: * This Field is required
Academic Degree(s) or education level completed (select all that apply):
If Other:
Preferred email address: * This Field is required Information for: Your Email : Please enter a valid e-mail address. A confirmation email will be sent to this address upon registration. * This Field is required Information for: Verify Your Email : Please enter a valid e-mail address. A confirmation email will be sent to this address upon registration.
Address:
Address 2:
Address 3:
City: * This Field is required
U.S. State:
OR Non-U.S. State/Province: Information for: Province (Outside USA) : For non-USA addresses.
Zipcode/Postal Code: * This Field is required
  Note: Enter 00 for countries that do not have zipcodes.
Country: * This Field is required
Work Phone number:
Additional phone number (optional):
Website/homepage  (optional): Information for: Organization Website : <p>
	Organization website</p>

Name of Institution or Organization


Name of Institution or Organization: * This Field is required
Type of Institution: * This Field is required If Other:
Department/Unit/Clinic:
Professional/Organizational/Industry Affiliation: * This Field is required
Research Area/Specialty (Select the best choice): * This Field is required If Other:
Secondary Research Area (Optional): If Other:
Professional email address (if different from preferred email address already entered): Information for: Alternate Email Address #2 : <p>
	<span>An email account showing an affiliation with a professional organization is required for professional access to DS-Connect. This email address may not be a personal email address such as gmail, yahoo, or hotmail. This email address may be, but is not required to be, the same as entered above for the primary email address.</span></p>

Institutional/Organizational/Industry Contact Person

This section refers to registrant's superior, administrative contact, institutional business official, or colleague in your organization.

This is for verification purposes only and we will not be contacting this person unless we would need to verify your affiliation.

Name: * This Field is required
Title: * This Field is required
Email address: * This Field is required
Work Phone: * This Field is required
Website/home page:

 

Access Purpose


Why do you request access to DS-Connect®? (Select all that apply)
I want to use these data:
If "Other" selected:

Choose your DS-Connect Username and Password


Username: * This Field is required Information for: Your Username : Please enter a valid username.  No spaces, at least 3 characters and contain 0-9,a-z,A-Z
  Please enter a valid password. No spaces, at least 8 characters and contain at least one lowercase letter, one uppercase letter, one number and one special character. For example: Password@1. In an effort to maintain security, your password will be required to be re-set regularly.
Password: * This Field is required Information for: Your Password : Please enter a valid password.  No spaces, at least 8 characters and contain lower and upper-case letters, numbers and special characters. In an effort to maintain security, your password will be required to be re-set regularly. * This Field is required Information for: Verify Password : Please enter a valid password.  No spaces, at least 8 characters and contain lower and upper-case letters, numbers and special characters. In an effort to maintain security, your password will be required to be re-set regularly.

Terms of Use

DS-Connect® has an interest in promoting scientific investigation and allows access to the de-identified data subject to the limitations outlined in the following agreement. These limitations are:

  • Only de-identified data will be provided to requestors.
  • DS-Connect® is not responsible for any interpretation of the data in this registry.
  • DS-Connect® is not designed as a surveillance tool for comprehensive epidemiological analyses.
  • The data may not be representative of the Down syndrome population in the United States or worldwide.

* This Field is required
I agree to the Terms and Conditions
* This Field is required
I agree to the Research Review Policy

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