The Eunice Kennedy Shriver National Institute of Child Health and Human Development and the National Institute on Aging, both within NIH, are partnering on an initiative to understand aging in adults with DS. Many people with DS develop Alzheimer’s-related brain changes in their 30s that can lead to dementia in their 50s and 60s. The study, which focuses on identifying biomarkers of aging and tracking progression of Alzheimer’s, is using DS-Connect® to help recruit about 500 adults with DS at sites around the United States and England. Participants will donate blood samples, undergo brain imaging studies, and take tests of learning and memory over the course of several years. They will be compensated for their time and expenses.

If you or the person with DS is age 40 years or older and can travel to one of the following locations, contact the study coordinator listed:

·         Staten Island, New York, USA: New York State Institute for Basic Research in Developmental Disabilities, Deborah Pang: 718-494-5165 or This email address is being protected from spambots. You need JavaScript enabled to view it.

·         Boston, Massachusetts, USA: Harvard University/Massachusetts General Hospital, Nusrat Jahan: 617-726-9045 or This email address is being protected from spambots. You need JavaScript enabled to view it.; or Courtney Jordan: 617-724-2227 or This email address is being protected from spambots. You need JavaScript enabled to view it.

·         Irvine, California, USA: University of California, Irvine, Eric Doran: 714-456-8443 or This email address is being protected from spambots. You need JavaScript enabled to view it.; or Alicia Hernandez: 714-456-5333 or This email address is being protected from spambots. You need JavaScript enabled to view it.

Contact us at This email address is being protected from spambots. You need JavaScript enabled to view it. to get contact information for the study. You can also learn more about the study and more about the connection between Down syndrome and Alzheimer’s.

Registered Professionals

Month-Year Number of Registered Professionals
9-14 8
10-14 11
12-14 20
1-15 55
2-15 77
3-15 94
4-15 110
5-15 124
6-15 144
7-15 155
8-15 167
9-15 176
10-15 183
11-15 192
12-15 198
1-16 206
2-16 220
3-16 228
4-16 236
5-16 240
6-16 243
7-16 244
8-16 247
9-16 248
10-16 249
12-16 251
1-17 253
2-17 255
3-17 258
5-17 267
6-17 269
7-17 270
8-17 278
9-17 287
10-17 290
11-17 292
12-17 297
1-18 302
2-18 307
3-18 311
4-18 316
5-18 318
6-18 326
7-18 334
8-18 339
9-18 343
10-18 349
11-18 352
12-18 353
1-19 356
2-19 365
3-19 368
4-19 371
5-19 383
6-19 391
7-19 402
8-19 409
9-19 413
10-19 426
11-19 429
12-19 433
1-20 436
2-20 437
3-20 439
4-20 447
5-20 454

Studies Supported by DS-Connect®

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