Radio Interview for The Road We've Shared

The Road We've SharedExternal Web Site Policy is an online community geared towards parents/caregivers of adults living with Down syndrome.

Melissa Parisi, Lisa Kaeser, and Sujata Bardhan talked about "DS-Connect®: The Down Syndrome Registry," and their exhibitor booth at the National Down Syndrome Congress Convention 2014 at Indianapolis.

The main purpose of the registry is to connect people with Down syndrome with researchers, by providing health information related to their Down syndrome diagnosis.  These data will be kept private and secure.  Ultimately, this registry will speed up clinical research on Down syndrome with the goal of providing new treatments and improving the quality of life for individuals with Down syndrome.

Here is the link to their online interview: 

http://www.blogtalkradio.com/theroadweveshared/2014/07/03/nih-talks-about-ds-connect--the-down-syndrome-registryExternal Web Site Policy