Explore the resources listed below that are relevant to the DS community. New resources will be added as they become available.

Children with Down Syndrome: Health Care Information for Families (AAP)

Aging and Down Syndrome: A Health & Well-Being Guidebook (NDSS) (8 MB PDF)

Alzheimer’s Disease & Down Syndrome: A Practical Guidebook for Caregivers (NDSS) (10 MB PDF)

NICHD Health-Down syndrome

Centers for Disease Control and Prevention (CDC) - Down syndrome page

Centers for Disease Control and Prevention (CDC) - Growth Charts for Children with Down syndrome

About Clinical Trials

A Participant's Guide to Clinical Trials (NIAID)

Clinical Trials (National Cancer Institute)

Clinical Trials (MedlinePlus)

Children and Clinical Studies (NHLBI)


Select the links below for further information on any of our DS Consortium partners

National Institutes Of Healt logo


National Cancer Institute (NCI)

National Heart, Lung, and Blood Institute (NHLBI)

National Human Genome Research Institute (NHGRI)

National Institute on Aging (NIA)

National Institute of Allergy and Infectious Diseases (NIAID)

Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD)

National Institute on Deafness and Other Communication Disorders (NIDCD)

National Institute of Dental and Craniofacial Research (NIDCR)

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)

National Institute of Mental Health (NIMH)

National Institute on Minority Health and Health Disparities (NIMHD)

National Institute of Neurological Disorders and Stroke (NINDS)

National Center for Advancing Translational Sciences (NCATS)

American Academu of Pediatrics logo


American Association on Intellectual and Developmental Disabilities logo


Association of University Centers on Disabilities logo


Down Syndrome Affiliates In Action logo


Down Syndrome Medical Interest Group-USA logo

LuMind Research Down Syndrome Foundation logo

Global Down Syndrome logo


International Mosaic Down Syndrome Association logo


Alzheimer’s Association logo


National Task Group on Intellectual Disabilities and Dementia Practices logo

Lejeuneusa logo


National Down Syndrome Congress logo


National Down Syndrome Society logo


Down Syndrome International logo


Specical Olympics logo

T21 Research Society logo

Seft Advocates logo