DS-Connect® is a powerful resource where people with Down syndrome and their families can:

  • Connect with researchers and health care providers.
  • Express interest in participating in certain clinical studies on Down Syndrome, including studies of new medications and other treatments.
  • Take confidential health-related surveys. These surveys are aimed at better understanding of the health of people with Down Syndrome across their lifespans.

Join the Registry Set up a Professional Account Información en español

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The Effect of Congenital Heart Disease on Employment, Neuropsychological Outcomes, and Quality of Life in Adults with Down Syndrome

Would you like to learn more about a survey-based research study that aims to answer questions about outcomes and function in adults with Do... Read more about The Effect of Congenital Heart Disease on Employment, Neuropsychological Outcomes, and Quality of Life in Adults with Down Syndrome
 

University of Alabama Intellectual Disabilities Participant Registry (UAIDPR)

UAIDPR is a program in which individuals with DS participate in studies that help to increase understanding of DS and how to meet its challe... Read more about University of Alabama Intellectual Disabilities Participant Registry (UAIDPR)
 

Registration Goal

Goal: 10000
Current: 5037